The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

Privacy Policy

National Down Syndrome Society is dedicated to preserving the privacy of all personal information about visitors to this site.

This website is owned and operated by the National Down Syndrome Society (hereinafter "NDSS") for the purpose of providing to its user information about NDSS branded products, and entertainment. NDSS is concerned about preserving the privacy of all personal information about visitors to this site. Please be assured that NDSS does not share or sell any information that you give us, except as detailed below. Any personally identifiable information collected by NDSS on this site is for special offer fulfillment purposes, providing users with information and entertainment, and that information is destroyed once the request or offer has been fulfilled. However, if you choose to opt-in for future offers and updates, your information will be kept in a secure database in order to alert you via email to new features, special offers, updated information and new services. As a further explanation of this privacy statement, we have prepared this disclosure regarding the privacy practices for the website.

If you feel that NDSS is not abiding by its posted privacy policy, you should contact us immediately at webmaster@NDSS.org or National Down Syndrome Society, 666 Broadway, New York, NY 10012 or (800) 221-4602.

Cookies

We may use "cookies" on some pages of our website to help us serve you better each time you return. A cookie is a small text file which is sent by a website, accepted by a web browser and then placed on your hard drive. The data collected from these cookies helps us to analyze browsing patterns of our visitors in order to improve the content and design of our website. The information collected from these cookies is for the exclusive use of NDSS and will not be shared with other vendors. The cookie expires after six months, so there is little concern about it storing outdated information. You can always set your browser to refuse all cookies or to warn you when a cookie is sent to you. This will provide you with more control over the acceptance of cookies on your hard drive. However, it is possible that some portions of this website will not function properly or may perform more slowly if you choose to reject cookies.

Log Files

An IP address is a number that is automatically assigned to your computer whenever you are surfing on the Web. Web servers automatically will identify a computer by its IP address. We use IP addresses to analyze trends, administer the site, track users' movement and gather broad demographic information for aggregate use. IP addresses are not linked to personally identifiable information.

Sharing

At times, we may be working with third-party companies to execute a specific promotion or program. If the information is to be shared with any third party for the purposes of executing a specific promotion or program, the details will be clearly communicated in the program's rules for the specific program or promotion, and the third party will have no right to use the information for independent purposes. When a user signs up for these services, he or she will have to opt-in to permit NDSS to share names or other contact information necessary for the third party to provide these services. These third parties are not allowed to use personally identifiable information, except for the purpose of providing these services. In support of this policy, NDSS will enter into written agreements with all third parties to ensure that they will meet privacy standards, including the privacy standards of COPPA and the U.S. Commerce Department Safe Harbor provisions.

Links

If this website contains links to other sites, please be aware that NDSS is not responsible for the privacy practices of such other sites. We encourage our users to be aware when they leave our site and to read the privacy statements of each and every website that collects personally identifiable information. This privacy statement applies solely to information collected by this website.

Security

This website takes every precaution to secure our users' information. When users submit personally identifiable information via the website, the information is protected both online and off-line. The website supports the use of SSL to verify the identity of the site and to encrypt traffic between users' browsers and the site. If you have any questions about the security at our website, you can send an email to webmaster@NDSS.org.

Correction/Updating Personal Information

If a user's personally identifiable information changes (such as your zip code), or if a user no longer desires our service, we will endeavor to provide a way to correct, update or remove that user's personal data provided to us. This can usually be done by emailing Customer Support.

Choice/Opt-in

As noted above, any information collected by NDSS is for special offer fulfillment purposes only, and that information is destroyed once the request or offer has been fulfilled. However, if you choose to opt-in for future offers and updates, your information will be kept in a secure database in order to alert you via email to new features, special offers, updated information and new services. Users who provide information at the time of registration or other submission will be asked whether they wish to receive future offers and information from the website and may opt-in at that time by checking the appropriate opt-in box on the page where such personal information is collected.

Users of our site are always notified when their information is being collected for use by any third parties (see Sharing above). We do this so our users can make an informed choice as to whether or not they should proceed with services that require sharing their personal information with a third party.

Notification of Changes

If we decide to change our privacy policy, we will post those changes on our Homepage, so our users are always aware of what information we collect, how we use it, and under what circumstances, if any, we disclose it. If at any point we decide to use personally identifiable information in a manner different from that stated at the time it was collected, we will notify users by way of an email. Users will have a choice as to whether or not we use their information in this different manner.

We will always use information in accordance with the privacy policy under which the information was collected.

COPPA Compliance

This website allows individuals of any age to participate in our online offers, unless stated otherwise. In order to participate in any online offers, any child under the age of 18 need only provide us with his or her email address. This information is used for the sole purpose of fulfilling a one-time request and will be immediately deleted upon fulfillment of the one-time request. NDSS does not allow individuals under the age of 18 to opt-in to receive future emailings. Therefore, NDSS does not knowingly collect data for individuals that identify themselves as children under the age of 18.

If an opt-in request for a child under the age of 18 is knowingly received by NDSS, we will delete all personally identifiable information (including email address) concerning that child from the database. That information will in no way be used or given to a third party. If a parent discovers that his or her child has submitted personal information to NDSS via the NDSS website, they can remove their child from our database by sending an email to webmaster@NDSS.org, or by postal mail at the address:

National Down Syndrome Society
666 Broadway, 8th Floor
New York, NY 10012
Attn: NDSS.com

If a parent discovers that his or her child has submitted personal information to one of NDSS Promotional Offer web sites and wishes to opt-out, they may do so by visiting our unsubscribe page for promotional offers.

The Webmaster of this site can be contacted at webmaster@NDSS.org and at the address stated above. This will be the only person that receives, collects or maintains children's personal information, even temporarily, through the Website.

The Webmaster will not use the personal information of any known child for any purpose, including marketing back to the child.

The Webmaster will not disclose information collected from children to third parties.

  • Buddy Walk
  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors