NDSS provides free educational webinars to anyone who is interested in learning more about Down syndrome and related topics, such as health, education, research and family life.
The ABLE Act is Now the Law of the Land – What is Next?
Tuesday, February 3 at 1:00 PM Eastern Time
Presenters: Sara Hart Weir, NDSS President; Stuart Spielman, Autism Speaks Senior Policy Advisor and Council; Michael Morris, National Disability Institute Director; Catherine Beck, Advocate and Wife of Late NDSS Vice Chairman Stephen Beck Jr.; Chip Gerhardt, NDSS Board Member and Chair of the NDSS National Government Affairs Committee
Join NDSS as we discuss implications for the Down syndrome community and what we all need to know now that the ABLE Act is law.
Register for the webinar.
NDSS Federal and State Priorities
Wednesday, February 4th at 1:00 PM Eastern Time
Presenters: Ginny Sessions, NDSS Manager of Grassroots and Development and Heather Sachs, NDSS Director of State Government Affairs
Learn more about NDSS' 2015 federal and state priorities presented by Ginny Sessions, NDSS Manager of Grassroots and Development Programs, and Heather Sachs, NDSS Director of State Government Affairs.
Register for the webinar.
Below is a list of past NDSS webinars. Information from each webinar is posted after the presentation.
TAKING CHARGE OF MY HEALTH: PARTNERS IN HEALTH TRANSITION
December 16, 2014
Presenters: Mitchell Levitz, Marilyn Vitale and Katie Borras of the Westchester Institute for Human Development
The transition from pediatric to adult health care and services can be confusing and complicated for teens and young adults and their families. WIHD has developed a website to guide individuals and families through the various topics related to health transition, providing information and links to available resources. This webinar will review the various issues involved in health transition and show self-advocates and families how to use the website.
FINANCIAL PLANNING WITH HEART
November 19, 2014
Presenters: Simon Rogers, President/CEO of Basildon Financial
Join NDSS on Wednesday, November 19 at 1:00 PM ET as we present Financial Planning with Heart, a webinar presentation by Simon Rogers, President/CEO of Basildon Financial. During this presentation Simon will deliver information on special needs financial planning in plain English, answer all your questions, and empower you to make well informed financial choices.
(Investment Advisory services are offered through AlphaStar Capital Management LLC, a SEC Registered Investment Advisor. AlphaStar Capital Management, LLC and Basildon Financial are independent entities. Basildon Financial does not offer legal or tax advice.)
THE NATIONAL DOWN SYNDROME SOCIETY’S (NDSS) ADVOCACY: THE VITAL ROLE OF THE NDSS DS-AMBASSADOR GRASSROOTS PROGRAM AND SOCIAL MEDIA TO ACHIEVE SUCCESS
October 30, 2014
Presenters: Ginny Sessions, NDSS Manager of Grassroots and Development
Learn about NDSS' approach to advocacy, the important role of NDSS DS-Ambassador Program and other grassroots programs with the combined with social media and marketing outreach for achieving advocacy success.
The National Down Syndrome Society (NDSS) advocacy outreach has grown over the last two years into a one of a kind model that combines social media, marketing, and parent and self-advocate volunteers to help promote education, inclusion and welcoming of individuals with Down syndrome in our communities. The combination of a social media and marketing plan with a grassroots program is key to not only advocacy achievement but to provide important resources for education and inclusion. Part of this combination for NDSS is The NDSS DS-Ambassadors Program. NDSS DS-Ambassadors are advocate volunteers to taking part in the democratic process and serve as a liaisons between NDSS and their Congressional Delegations. NDSS DS-Ambassadors play a vital role to advocate for the NDSS’ legislative agenda including priorities like the Achieving a Better Life Experience (ABLE) Act, research funding and many more.
AN HOUR WITH RACHEL COLEMAN OF "SIGNING TIME!"
October 23, 2014
Presenters: Rachel Coleman of "Signing Time"
Please join the National Down Syndrome Society for a special Down Syndrome Awareness Month edition of the NDSS Webinar Series, An Hour with Rachel Coleman of “Signing Time!”, where you will have the opportunity to ask Rachel your questions about signing, parenting and everything in between!
Rachel Coleman is best known as the Emmy-nominated host and one of the creators of the children’s television show and DVD series, “Signing Time!” (http://www.signingtime.com) and its sister-series, “Baby Signing Time!” Inspired by her daughter Leah’s deafness, Signing Time teaches families to communicate through American Sign Language. Rachel’s newest project, “Rachel & The Treeschoolers,” takes on the ambitious task of teaching a full preschool curriculum in twelve musical episodes and activities.
Rachel is one in a million, statistically speaking. One-in-one thousand babies are born profoundly deaf, like her daughter Leah, and one-in-one thousand babies are born with the birth defect spina bifida like her daughter Lucy! Rachel shares her family’s unexpected adventures on her blog www.rachelcoleman.com. She is the President of the Signing Time Foundation a 501c3 (http://www.signingtime.com/foundation), an NDSS National Buddy Walk® Partner. The STF is dedicated to making sign language fun and accessible to all children, creating a world in which all children can express themselves and be understood, putting communication.
PROJECT LIFESAVER INTERNATIONAL & THE LIFE THREATENING BEHAVIOR OF WANDERING
September 24, 2014
Presenters: Gene Saunders, CEO & Founder Project Lifesaver International and Sara Weir, NDSS NDSS VP of Advocacy & Affiliate Relations
Please join NDSS and Project Lifesaver International for a timely and important webinar, "Project Lifesaver International and the Life Threatening Behavior of Wandering," presented by Gene Saunders, CEO & Founder Project Lifesaver International. During the webinar, NDSS VP of Advocacy & Affiliate Relations Sara Weir will provide background information and an update on NDSS’ work with the US Justice Department on developing a law enforcement training program for working with individuals with disabilities.
Project Lifesaver International is a non-profit organization that bridges the technological gap for “at risk” populations and public safety agencies, providing police, fire/rescue and other first responders with a comprehensive program including equipment and training to quickly locate and rescue “at risk” individuals with cognitive disorders who are at constant risk to the life threatening behavior of wandering including those with Alzheimer’s disease, Autism, and Down syndrome.
LEARN HOW TO PASS THE DOWN SYNDROME PRO-INFORMATION LAW IN YOUR STATE
July 28, 2014
Presenters: Sara Weir - NDSS VP of Advocacy & Affiliate Relations
Ginny Sessions – NDSS Manager of Grassroots & Development
Rick Kosmalski – NDSS Board Member; NDSS DS-Ambassador from Delaware
Heather Sachs – Down Syndrome Network of Montgomery County Board Member; NDSS DS-Ambassador from Maryland
Learn how to pass important the "Down Syndrome Pro-Information Law" in your state. Both Delaware and Maryland successfully enacted legislation focused on providing accurate, up-to-date, evidenced-based information on Down syndrome to women and families who undergo prenatal testing. Join this webinar to learn from our experienced advocates and NDSS DS-Ambassadors, Rick Kosmalski from Delaware and Heather Sachs from Maryland, on their lessons learned and how they successfully passed legislation in their states. NDSS remains committed to supporting advocates and affiliates to enact this legislation across the country, which builds upon the federal law - the Prenatally and Postnatally Diagnosed Conditions Awareness Act (Public Law 110-374). This law was signed into law by President Bush in October 2008.
A SOLUTION FOR TEACHING BIKE RIDING TO PEOPLE OF ALL ABILITIES
June 26, 2014
Presenter: Dona Ochsner, Education Specialist, Strider Sports Int'l, Inc.
Too often people with special needs never learn how to ride a bike. However, with the right tools and training this trend can be reversed! Let’s create new riders by learning what a balance bike is and how to use it to teach balance required to ride a bike. In this webinar we explore the importance of teaching balance first and how a balance bike does just that. We also learn other solutions for using your existing bike if purchasing a balance bike is not an option.
DOWN SYNDROME PARENTING 101: MUST-HAVE ADVICE FOR MAKING YOUR LIFE EASIER
May 22, 2014
Presenter: Natalie Hale, Author, "Down Syndrome Parenting 101"
In this webinar, Natalie Hale guides us through a quick look at the cradle-to-independent-living book "Down Syndrome Parenting 101," which won the Best Special Needs Parenting Book of 2012 About.com Reader’s Choice Award. Along with highlighting some important "Parent Power Points."
Natalie is the mother of 29-year-old Jonathan, who has Down syndrome, ADHD, and ODD (Oppositional Defiant Disorder.) She is also an award-winning author, innovative educator, founder of the publishing house Special Reads for Special Needs, and for over 20 years, a national speaker on the topic of teaching reading to learners with Down syndrome and other developmental delays. She continues to teach parents and educators across the country through workshops and through her Facebook page, Down Syndrome Reading with Natalie Hale.
To order the book Down Syndrome Parenting 101:
On Amazon (paperback or Kindle editions): Down Syndrome Parenting 101
On Natalie's Site (paperback): Down Syndrome Parenting 101
“I CAN DO IT!”: WAYS TO GROW YOUR CHILD’S INDEPENDENCE
April 29, 2014
Presenter: Katie Bergeron Peglow
Katie Bergeron Peglow, PT, MS is a licensed Pediatric Physical Therapist with hands-on experience with many wonderful children who have special needs. When asked, “What is the thing you enjoy the most about helping parents or caregivers?” Licensed Pediatric Physical Therapist Katie Bergeron Peglow said: “It gives me great satisfaction to be able to learn about each child’s specific needs and find the best solution. I love finding adaptive equipment that helps each child be more independent!” Currently, Katie is the COO for Adaptivemall.com, the leading online pediatric adaptive equipment store. During this webinar, she will share her tips for properly using products that will help to grow a child’s independence.
Your Transition Questions Answered!
February 14, 2014
Presenter: Jo Ann Simons
A presentation and Q&A session on the transition planning process with expert Jo Ann Simons, author of The Down Syndrome Transition Handbook.
Empowering Individuals with Special Needs Through Music
February 20, 2014
Presenter: Daniela Clapp
During Empowering Individuals with Special Needs Through Music, Daniela Clapp, a piano teacher for individuals with special needs and mother of Christina, who has Down syndrome, demonstrates how to use the power of music to be your child's greatest advocate and teacher, even if you have no musical background.
SHARE THE LOVE: A SIB'S JOURNEY, PART I - THE JOYS & FRUSTRATIONS OF GROWING UP
December 16, 2013
Presenter: Anne Marie Cerniglia
In the first of a two-part series on sibling issues, Anne Marie Cerniglia presents her experiences growing up with her sister Yvonne, who has Down syndrome. From birth through young adulthood, Anne Marie shares some of the triumphs and struggles she has experienced, offering her perspective as a sibling and what parents should keep in mind - from a sibling's point of view.
SHARE THE LOVE: A SIB'S JOURNEY, PART II - JOURNEYING THROUGH ADULTHOOD TOGETHER
December 18, 2013
Presenter: Marianne Marts
Join NDSS in welcoming Author, Adult Disability Advocate, Speaker and Certified Trainer Marianne Marts for an informative presentation covering issues unique to adult siblings of individuals with Down syndrome. We as siblings will be in the lives of our family members with special needs longer than anyone. We will be there after our parents are gone and special education services are a distant memory. If we are provided with support and information, we can help our siblings live a higher quality and productive life. Sharing our families journey I will help you understand the needs of siblings in addition to why & how to include us in the journey with balance. Finally providing necessary resources to help plan for success rather than crisis not “if” an emergency will happen but when it does.
SUPER NUTRITION FOR CHILDREN WITH DOWN SYNDROME
Wednesday, November 20, 2013
Presenter: Christine Waltermyer
NDSS welcomed Christine Waltermyer for an informative presentation on maximizing your child's potential by feeding them nutrient-dense foods. Discover which foods deliver the most benefit to support your child's wellness. Food affects behavior, mood, mental focus, digestion and immunity. You will learn in this webinar how to seamlessly weave foods into your child's diet that you never dreamed they would eat, and that will support them to be as healthy as possible.
LAW ENFORCEMENT, FIRST RESPONDERS & PEOPLE WITH INTELLECTUAL DISABILITIES
September 26, 2013
Presenters: Patti Saylor, mother of Ethan Saylor; Sgt. A.D. Paul of the Plano Texas Police Department; and David Whalen, Statewide Project Coordinator, First Responder Disability Awareness Training, Niagara University, New York
NDSS co-hosted this webinar, which focuses on the training of law enforcement and first responders, with the National Down Syndrome Congress (NDSC) and Down Syndrome Affiliates in Action (DSAIA). Sgt. Paul Plano has built and maintained training for police officers in several jurisdictions in Texas, while David Whalen's project was recently awarded a $193,270 grant from the New York State Developmental Disabilities Planning Council (DDPC) to develop and conduct a statewide disability awareness and sensitivity curriculum and the corresponding training tools for first responders.
A.D. Paul's Sildes
David Whalen's Slides
IDENTIFYING AND PRIORITIZING YOUR FAMILY'S NEEDS
August 29, 2013
Presenters: Dr. Ann Turnbull, Ed.D. and Jawanda Mast
Although a number of family needs assessment tools have been developed, these tools are typically developed without family input and do not cover many tasks for which families are typically responsible. The Family Needs Assessment Tool, which was the focus of this presentation, was developed through a partnership of researchers and families from the U.S. and 5 other countries. This tool will enable individuals to identify and prioritize their family’s needs to be addressed by members of the family, their support network and their professional services. This tool will also enable NDSS to learn members’ family priorities as the basis for formulating responsive future goals.
PRESUMING COMPETENCE EVERY DAY IN THE CLASSROOM: INCLUSIVE SUPPORTS FOR STUDENTS WITH DOWN SYNDROME
July 25, 2013
Presenter: Dr. Cheryl Jorgensen, PhD
During this presentation inclusive education expert Dr. Cheryl Jorgensen, PhD offers specific examples of inclusive classroom supports, particularly in the area of accessible instructional materials.
Referenced in Webinar: Books on Adapting Instruction Based on General Education Standards, Common Planning Time for Inclusion, Common Planning Time from Villa and Thousand Creating an Inclusive School, Down Syndrome News Parts 1 and 2, Inclusion Means More Than Just Being In, Least Dangerous Assumption, Peter? He Comes and Goes...
UNLEASH LIFE: LASTING INDEPENDENCE FOR EVERYONE
June 27, 2013
Presenter: Ryan Platt, Founder of A Special Needs Plan and Special Needs Knowledge
This presentation is focused on understanding the lifetime needs of individuals who have Down syndrome and/or other disabilities and ensuring those needs are always met. During the webinar, parents will learn how to craft their "story," which defines the future caregiving environment and who will be involved. Parents and caregivers will also learn more about the tools that may be necessary including Special Needs Trusts, wills, funding sources, government benefits, tax strategies, guardianship and communication strategies.
THE NDSS SELF-ADVOCATE ADVISORY BOARD PRESENTS: SELF-ADVOCATES SPEAK OUT
June 7, 2013
Presenters: Chris Burke, Tavrick Lawless, Mitchell Leviz, Mia Peterson, Erin Thompson and Sara Wolff
During this webinar, Chris Burke, Tavrick Lawless, Mitchell Leviz, Mia Peterson, Erin Thompson and Sara Wolff discuss what it means to be self-advocates, ways self-advocates can begin advocating for themselves and how organizations can incorporate self-advocates into their programming.
Strengthening Your Relationship: Perspectives from Mothers and Fathers Raising Children with Down Syndrome
May 22, 2013
Presenters: Dr. Laura Marshak and Courtney Williams
This presentation covers relationship concerns and useful strategies for families with children who have Down syndrome and/or other disabilities.
AGING AND DOWN SYNDROME WITH DR. JULIE MORAN
March 19, 2013
Presenter: Dr. Julie Moran
This special presentation, made in honor of World Down Syndrome Day, coincides with the release of the new NDSS publication Aging and Down Syndrome: A Health and Well-Being Guidebook and gives an overview of the publication's content.
View the NDSS publication Aging and Down Syndrome: A Health and Well-Being Guidebook on which the webinar is based.
INCLUSIVE HIGHER EDUCATION - THE PATH TO A NEW FUTURE FOR STUDENTS WITH INTELLECTUAL DISABILITIES
February 20, 2013
Presenters: Meg Grigal and Debra Hart, co-authors of Think College!: Postsecondary Education Options for Students with Intellectual Disabilities
During this webinar, co-authors Meg Grigal and Debra Hart provide a big picture perspective on the current landscape of postsecondary education options for students with intellectual disabilities. The purpose of higher education and its associated outcomes is described and recent research documenting the connection between college and employment for youth with intellectual disabilities is shared. Audience members will also learn about new provisions in the Higher Education Act that support access to programs and financial aid for individuals with intellectual disabilities.
Referenced in Webinar: What's the Point? A Reflection About the Purpose and Outcomes of College for Students with Intellectual Disabilities
AN UPDATE ON THE CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES
February 13, 2013
Presenters: Executive Director of the United States International Council on Disabilities David Morrissey and Disability Rights Program Manager of the United States International Council on Disabilities Esme Grant
This webinar focuses on the Convention on the Rights of Persons with Disabilities. CRPD seeks to ensure that countries across the globe provide people with disabilities the same rights as everyone else in order to live full, satisfying and productive lives. NDSS, along with 300 national organizations, supports the US ratification of CRPD.
NDSS YOUR WAY: INDEPENDENT FUNDRAISING
December 20, 2012
Presenter: Pam Sandonato, NDSS VP of Development
ACHIEVING MEANINGFUL EMPLOYMENT FOR YOUTH WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES: HIGH SCHOOL TRANSITION THE PROJECT SEARCH WAY
November 29, 2012
Presenters: Maryellen Daston, Ph.D. and Susie Rutkowski, M.Ed., co-authors of High School Transition that Works: Lessons Learned from Project SEARCH
AN UPDATE ON DOWN SYNDROME RESEARCH - A COLLABORATION BETWEEN DSRTF AND NDSS IN CELEBRATION OF DOWN SYNDROME AWARENESS MONTH
October 16, 2012
Presenters: Dr. Roger Reeves, NDSS VP of Advocacy & Affiliate Relations Sara Weir, and DSRTF Co-Founder Patty White
In celebration of October 2012 as Down Syndrome Awareness Month, the National Down Syndrome Society and the Down Syndrome Research and Treatment Foundation collaborated with Dr. Roger Reeves to update the Down syndrome community on the status of Down syndrome cognition research. Dr. Roger Reeves is Professor in the Department of Physiology and a Core Faculty Member of the McKusick-Nathans Institute for Genetic Medicine at the Johns Hopkins University School of Medicine. He is noted for his contributions to the study of genes using animal models to understand to identify genetic modifiers that contribute to more or less severe presentation of Down syndrome.
HOW YOU CAN HELP PASS A DOWN SYNDROME PRENATAL TESTING INFORMATION LAW
September 20, 2012
Presenters: NDSS, Down Syndrome Affiliates in Action (DSAIA) and the Massachusetts Down Syndrome Congress (MDSC)
An Afternoon with Chris Burke
August 28, 2012
Presenter: Chris Burke
Here, actor and NDSS Goodwill Ambassador Chris Burke discusses his career as a network TV star playing "Corky" on TV's Life Goes On, his role as an advocate for people with disabilities and answers questions from webinar participants.
Finding Beauty in the Unexpected
July 26, 2012
Presenter: Kelle Hampton
Blogger, photographer and author Kelle Hampton discusses her memoir Bloom: Finding Beauty in the Unexpected in the webinar. Hampton has received wide acclaim for chronicling the simple joys and challenges of motherhood through her popular blog, Enjoying the Small Things, and Bloom, a New York Times best-seller.
Learning Is for Everyone - Making College a Reality for Students with Intellectual Disabilities
June 14, 2012
Presenters: Donald Bailey and NDSS Senior Policy Advisor, Postsecondary Education, Stephanie Lee
Discussing his book titled Learning Is for Everyone: Making College a Reality for Students with Intellectual Disabilities, Donald Bailey, Executive Director of the Charleston Transition College, recounts the inspiring true story of his family's quest to provide postsecondary opportunities for young adults with intellectual disabilities and Stephanie Smith Lee, Senior Policy Advisor, Postsecondary Education, National Policy Center, shares resources and action steps.
How You Can Help Us Pass the ABLE Act Today
May 22, 2012
Presentation by representitives from NDSS and Dads Appreciating Down Syndrome (D.A.D.S.) National.
Prospects for Improving Cognition in People with Down Syndrome
April 19, 2012
Presenter: Dr. Omar Khwaja, of Roche, a research-focused healthcare company.
Helping You Ensure Quality of Life For Loved Ones with Special Needs
March 15, 2012
Presenters: Joan Cleveland and Brett Berg of Prudential Life Insurance
Executive Functioning in Students with Down Syndrome
February 23, 2012
Presenters: Lisa A. Daunhauer, ScD and Deborah J. Fidler, PhD
Understanding Nutrition-Related Challenges to Creating Healthy Eating Habits for Individuals with Down Syndrome
January 12, 2012
Presenter: Joan Guthrie Medlen
ABLE Act 101 – Everything You Need to Know About the Achieving a Better Life Experience Act
December 7, 2011
Presenters: representatives from NDSS and Representative Ander Crenshaw's (R-FL) staff.
Vision and eye issues affecting individuals with Down syndrome
October 13, 2011
Presenter: Dr. W. Walker Motley
Translating Public Policy Strategies into Sexy Science for the Down Syndrome Community
September 27, 2011
Presenters: Dr. Karen Summar, NDSS VP of Public Policy Madeleine Will and NDSS VP of Advocacy & Affiliate Relations Sara Weir
Oral Health and Down Syndrome
August 29, 2011
Presenter: Dr. Jessica De Bord
Camp PALS: Building Communities and Setting Them Free
July 21, 2011
Presenter: Jenni Newbury
Respiratory Concerns in Children with Down Syndrome
June 2, 2011
Presenter: Dr. Paul Moore
Sibling Issues: What Your Other Children Without Down Syndrome Are Thinking
May 19, 2011
Presenters: Dr. Brian Skotko and Sue Levine
I'm Down With You
April 13, 2011
Presenters: Jagatjoti Khalsa and Sarah Schleider
Buddy Walk: More than Just a Walk
March 10, 2011
Presenters: NDSS Buddy Walk Director Becky Switalski and NDSS VP of Development Pam Sandonato
Special Needs Solutions for All Ages
February 22, 2011
Presented by Prudential
Slides no Longer Available
January 18, 2011
Presenter: Patrice Linehan
Developing Residential Options For Individuals With Disabilities
December 9, 2010
Presenter: Dafna Gordon
For D.A.D.S. and Fathers: Public Policy 101
November 23, 2010
Presenters: Joe Meares, Steve Beck and Tom Milvert
Social Development and Sexuality
October 20, 2010
Presenter: Leslie Walker Hirsch
Fundraising Beyond the Buddy Walk
September 14, 2010
Presenters: Toby Newman and NDSS VP of Development Pam Sandonato
My Great Story
August 25, 2010
Presenters: Kimberly McCoy, Sarah Schleider, NDSS Communications & Social Media Manager Jordana Stern
Children with Down Syndrome: Perspectives on Development and Behavior
July 23, 2010
Presenter: Dr. Mary Pipan
Why Not College: Inclusive Postsecondary Education for Students with Intellectual Disabilities
June 18, 2010
Presenters: NDSS VP of Public Policy Madeleine Will and NDSS Senior Policy Advisor, Postsecondary Education, Stephanie Lee
The Ultimate Transition Workshop
May 6, 2010
Presenter: Jo Ann Simons
Atypical Behavior and Down Syndrome
March 31, 2010
Presenter: Dr. Mary Pipan
Prenatal Diagnosis of Down Syndrome
February 18, 2010
Presenter: Dr. Brian Skotko
Leadership Opportunities for Adults with Down Syndrome
January 29, 2010
Presenters: Essie Pederson, Pam Rieke and Annie Callan
Universal Design for Learning
October 20, 2009
Presenter: NDSS Associate Director, Education Policy, Ricki Sabia
Introducing My Great Story
September 22, 2009
Presenters: Sarah Schleider and NDSS Executive VP Beth Finkelstein