The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

Erdmann Family Story
Aubry in Daddy's Hands
Aubry in Daddy's Hands
Erdmann Family Story

Mark and I met in 2005 after years of searching for each other. We fell in love almost from day one and knew we would spend the rest of our days together as a team. We knew we wanted to have kids from the beginning. We tried for some time without luck. Then, we started fertility treatments and found out we would be having three beautiful babies. We were over the moon. Then, in December, we lost our first baby. We were devastated but thrilled to find out the other girls were fine. Then, in March, we were told our baby, Gracie, was very sick and would not be born alive. We were devastated and lost our daughter two weeks later. There was just one baby left; she was born the following week, and we named her Emily. She was born at 25 weeks, weighting 1 pound, 8 ounces, but she was healthy and alive. We were so blessed and grateful. We were told at the birth of Emily we had the chance of becoming pregnant on our own, as, after pregnancy, fertility is higher. We decided Emily needed a sibling, as she was supposed to have two, and we decided to give it a try. Just three months later, we became pregnant again. Our fears of another multiple pregnancy were dispelled when we found only one beautiful heart beat. The pregnancy was going great. No complications. No drama. We were told it was another girl. Emily would have her sister. Then, at 5 months pregnant, we had an AFP test, which tests for Down syndrome. It came back with a high probability that the baby would have Down syndrome. We were in denial but agreed to see a geneticist for further testing. They did many ultrasounds, as well as an amniocentesis. They assured us they saw no signs of Down syndrome in the ultrasounds, and were almost positive the AFP was a false "positive." We were relieved. Then, one morning the phone rang, and we were told our beautiful daughter would in fact have Downs syndrome. We were devastated. Not because she would not fit into our perfect little family, but because we were afraid for her health, well being, and the challenges she would have to face in her life. We knew people who had adult children with Down syndrome, but no one our age. We felt very alone. Aubry was born on May 14th, 2008. She was 5 weeks early and beautiful! She stayed in the NICU for 10 days, then came home to join our family. She was alert, affectionate, sweet and easy from day one. She had two holes in her heart, which took months to close, but they did. She has chronic neutropenia, which makes her immunity low, and was in isolation for the first 7 months of her life and has endured too many blood tests to count, but she has never shown any unhappiness. She has hearing loss due to small curved ustations tubes, which is being corrected by surgery, and she still manages to laugh everyday, play with her sister, torment our poor dog, Bella, and work on learning to walk and talk. Although the last year has not been easy for her, mainly due to health issues, which we now seem to be resolving, she has grown strong and stubborn, and become more fun than we could have ever imagined. We have learned more from Aubry in one year than most would learn from their children in a lifetime. We asked god for children; we did not ask for perfect children and yet that's exactly what we got, perfection.




Vote for your favorite story! Each month, the two stories with the most votes will be featured in the NDSS E-Newsletter.*

Email:        


Your email address will be used for voter tracking only, and will not be used for future NDSS emails.
Click here to become a fan on Facebook.
Click here to follow us on Twitter.

*Votes will be reset at the end of each month.



Full Name
Email
Country
State
Comments (1,000 character limit)



There are no comments.
  • Buddy Walk
  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors