The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

NIH Down Syndrome Consortium

In September 2010, the National Institutes of Health (NIH) joined with NDSS and other organizations interested in Down syndrome to form a consortium that will foster the exchange of information on biomedical and biobehavioral research on the chromosomal condition.

The NIH Down Syndrome Consortium is focused on the implementation of the NIH Down syndrome research plan, which set research goals for Down syndrome, based on previous research accomplishments and the need for research in areas in which evidence is lacking. The consortium meets two to three times a year.


  • Buddy Walk
  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors