The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012

Improving Health Outcomes & Quality of Life for People with Down Syndrome

Featured ImageWhen it comes to improving the health and quality of life for people with Down syndrome, there are two important aspects that NDSS strives to address legislatively, creating and maximizing research opportunities for Down syndrome, and improving the quality of healthcare provided to people with Down syndrome.

  1. Noninvasive Prenatal Tests (NIPT)

    NDSS continues to have concerns over the Noninvasive Prenatal Tests (NIPT) that are on the market today, which are not regulated by the U.S. Food & Drug Administration, the gold standard of regulation in the United States.

  2. The 21st Century Cures Act (H.R. 6)

    The 21st Century Cures Act will not only benefit patients with life-threatening diseases for which a cure is being sought, it will also benefit conditions, like Down syndrome, for which health outcomes and improvements are being pursued so they may live longer, healthier and more productive lives.

  3. NDSS Pro-Information State Law Toolkit

    NDSS, along with MDSC, has launched a toolkit for Down syndrome organizations, GACs, etc., on Down syndrome prenatal and postnatal testing information model legislation.

  4. Down Syndrome Research Funding

    NDSS works to create and maximize federal research funding opportunities across the federal government.

  5. Trisomy 21 Research Act Package

    During the 112th Congress, Sens. Sherrod Brown (D-OH) and Susan Collins (R-ME), and Reps. Cathy McMorris Rodgers (R-WA), Pete Sessions (R-TX) and Chris Van Hollen (D-MD) introduced a package of legislation aimed at strengthening the research infrastructure for Down syndrome and improving the translational research opportunities for Down syndrome. This legislation is known as the Trisomy 21 Research Package, which includes the Trisomy 21 Research Resource Act of 2011 and the Trisomy 21 Research Centers of Excellence Act of 2011.

  6. NIH Down Syndrome Consortium

    In September 2010, the National Institutes of Health joined with NDSS and other organizations interested in Down syndrome to form a consortium that will foster the exchange of information on biomedical and biobehavioral research on the chromosomal condition.

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  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors