The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
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New York New York 10012

NDSS Prenatal Information State Law Toolkit


The Prenatally & Postnatally Diagnosed Condition Act (P.L. 110-34) was enacted into federal law in 2008 to increase the readiness of accurate, up-to-date, and balanced information about Down syndrome to women and families considering prenatal testing, and the state of Massachusetts recently followed suit and passed a similar state law. The focus on recent federal and state legislation is a result of the many ways to screen for and diagnose Down syndrome during a pregnancy, including new noninvasive prenatal tests (NIPT) available in select markets.

NDSS Toolkit

NDSS offers its Down syndrome organizations and NDSS Governmental Affairs Committees (GAC) this prenatal testing information state model legislation toolkit. The goal of this toolkit is to help states to enact legislation to promote accurate, up-to-date information, evidenced-based information on Down syndrome and prenatal testing, similiar to the success of the new Massachusetts state law.

Model Legislation

Press release

Testimony Examples

  • Buddy Walk
  • NDSS Yourway
  • My Great Story
  • NDSS DS-Ambassadors