The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012

Sara Hart Weir, Interim President

Sara Hart Weir, MS, serves as the National Down Syndrome Society (NDSS) Vice President of Advocacy & Affiliate Relations. Ms. Weir leads the organization's Washington, DC office and oversees the organization’s work on Capitol Hill, its legislative agenda, and leads NDSS’ advocacy, affiliate, and educational programs. Ms. Weir was recently appointed by Governor Martin O’Malley of Maryland to Commission for Effective Community Inclusion of Individuals with Intellectual and Developmental Disabilities. Ms. Weir currently serves on the Board of Trustees for Westminster College, President of the Westminster College Alumni Council, on the National Task Group on Intellectual Disabilities and Dementia and as a Board Member to the Down Syndrome Association of Northern Virginia.

Prior to joining NDSS, Ms. Weir was a Vice President at Faegre BD Consulting in Washington, DC for over five years. At Faegre BD, she managed a diverse portfolio of clients across the Health & Life Sciences Practice, including nonprofit patient advocacy organizations, large academic research institutions, pharmaceutical and medical device companies, and public policy issue-specific coalitions. During her tenure at Faegre BD, Ms. Weir served as the national coordinator to the Safe Injection Practices Coalition (SIPC), a build a public/private partnership leading a national public health education and awareness campaign, the One & Only Campaign, focused on safe injection practices with the CDC and CDC Foundation. Ms. Weir also served as a Manager on GlaxoSmithKline’s (GSK) Federal Government Relations team, where she represented the company’s public health interests on Capitol Hill.

Previous to coming to Washington, Ms. Weir worked for a Congressman from Kansas. She earned a Bachelor of Arts in Psychology and Political Leadership from Westminster College (Fulton, Missouri) and a Master of Science in Public Policy and Management from Carnegie Mellon University’s Heinz College. Ms. Weir is currently enrolled into the NYU Stern Executive Master of Business Administration (MBA) program (class of 2016). She has earned many honors including; the Westminster College Senior of the Year, the Winston Churchill Award for Leadership and Service, and Coca-Cola Community All-American. Ms. Weir is the recipient of the 2014 Westminster College Young Alumni Achievement Award.

Ms. Weir's passion of advocating for all people with Down syndrome and their families stems from her friendship with a young woman from Kansas, Kasey, who happens to have Down syndrome. She first served as a mentor to Kasey over a decade ago. 

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