The National Advocate for People with Down Syndrome Since 1979

National Down Syndrome Society
666 Broadway, 8th Floor
New York New York 10012
800-221-4602
info@ndss.org 

Position Papers

The Position Papers explain the National Down Syndrome Society's view on a variety of topics.

  1. Use of the R-Word

    NDSS strongly condemns the use of the word "retarded" in any derogatory or inappropriate context.

  2. CDC Study on Prevalence of Down Syndrome

    The Centers for Disease Control and Prevention (CDC) study indicates that there are about 6,000 diagnoses of Down syndrome each year in the United States. One in every 691 babies is born with Down syndrome.

  3. Down Syndrome Prenatal Testing

    Knowing in advance either the risk or diagnosis of Down syndrome can help parents educate, inform and prepare themselves for all issues regarding this genetic condition. The decision whether to undergo prenatal testing must be solely that of the woman and family.

  4. Cosmetic Surgery for Children with Down Syndrome

    NDSS believes in supporting individuals with Down syndrome through full inclusion in the community and not attaching a stigma to their physical features.

  5. Racial Disparity

    In June 2001, a study was published by the Center for Disease Control and Prevention indicating a stark racial disparity in the median life spans of people with Down syndrome.

  6. The Use of Restraints, Aversive Interventions and Seclusion

    Children with Down syndrome, like all children, can have challenging behaviors. These behaviors should be addressed with the same strategies that are effective for all children: positive behavioral supports.

  7. Vitamin Therapy

    NDSS does not endorse the use of vitamin-related therapies. We urge parents considering the use of vitamin therapies for their children with Down syndrome to first consult with their family physicians.

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